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Clinical Staging Scales
While researching palliative care, I consistently read that eligibility is related to ‘quality of life’. I was confused as medical care...
Donna Spencer
May 31, 20234 min read
2 views


Only Part of the Journey - Hummers and Such
I had a particularly frustrating day and was especially grouchy on the phone call home to let my husband know I was finally on my way. ...
Donna Spencer
May 31, 20232 min read
0 views


Resistance to Change
Mom had gone through two caregiver agencies and was on the third one. She discontinued the first agency because they changed policy to a...
Donna Spencer
May 31, 20234 min read
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Hiccup in Home Health
After much wrangling, convincing, and talking with multiple individuals, dad finally received some of his physical therapy sessions...
Donna Spencer
May 31, 20233 min read
1 view
Disadvantages to Hospice Care
Although it may seem ungrateful to provide criticism of the many benefits under the hospice umbrella, there are several points most...
Donna Spencer
May 31, 20233 min read
16 views


Respite Care
One of the most important aspects of caregiving is caring for ourselves. Respite care can provide a break from caregiving and offer a...
Donna Spencer
May 31, 20232 min read
1 view


Quality of Life
While researching palliative care, I consistently read that eligibility is related to ‘quality of life’. I was confused as medical care...
Donna Spencer
May 31, 20234 min read
2 views


Similar but Not the Same - Palliative Care v. Hospice
The Center for Medicare and Medicaid Services (CMS) states that hospices are the largest providers of palliative care services in the...
Donna Spencer
May 19, 20234 min read
1 view
Locus of Control in Limbo
We go about our day-to-day routine, ever mindful that some tasks are mundane, and are much more attuned to tasks that are most meaningful...
Donna Spencer
May 19, 20234 min read
0 views
The Understated Value of Good Help: What Agencies Need to Know
In the book What Are Old People For?, the author, William H. Thomas, MD (2014, p. 246-247), believes that the problems facing those who...
Donna Spencer
Apr 7, 20233 min read
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The Order of Things
Recently, I listened to one of the best live presentations on Alzheimer’s Disease I have ever attended. Less than an hour in length, the...
Donna Spencer
Apr 7, 20233 min read
2 views


For Whom the Service Tolls
Atul Gawande had a particularly good point in his book, Being Mortal, about how a nursing home is typically chosen by the family of a...
Donna Spencer
Apr 5, 20233 min read
1 view


A Bird in a Cage: Role Captivity
There is no question in my mind that mom feels trapped. Today, she was told by her right-hand caregiver that she would have to leave...
Donna Spencer
Jan 20, 20234 min read
1 view


Perspectives of CG from a Family Member (Tertiary Caregiver)
It is my loved one you care for and I appreciate you being there. I especially want to thank you for being consistent, for showing up on...
Donna Spencer
Jan 20, 20232 min read
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What a Secondary Caregiver Wants You to Know
Service to others is the rent you pay for your room here on earth. - Muhammed Ali I have been hired to help you with your loved one. ...
Donna Spencer
Jan 20, 20233 min read
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Sanity Saving Support Group
Mom mentioned to me that she discovered dad had been diagnosed with dementia 8 years ago this month. I think she discovered this in the...
Donna Spencer
Jan 20, 20233 min read
2 views


Caregivers and Stereotypes
Life is as complex as we are. Sometimes our vulnerability is our strength, our fear develops our courage, and our woundedness is the road...
Donna Spencer
Jan 20, 20233 min read
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The Role of Empathy in Caregiving
I am reading the bestselling book titled Your Second Life Begins When You Realize You Only Have One by Raphaelle Giordano (2018). So far,...
Donna Spencer
Sep 5, 20223 min read
4 views
Nagging Versus Listening or Who's in Charge?
Don’t speak unless you can improve on the silence. – Spanish proverb I had been on my mom’s, well, case, for quite a while about how to...
Donna Spencer
Sep 4, 20224 min read
0 views


Dementia Chose Me
I did not choose dementia. For whatever reason, dementia chose me. I realize there is currently no cure; or at least I might have known...
Donna Spencer
Sep 4, 20223 min read
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